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坚持专业治疗 癫痫可控可治——“蒲公英项目”培训全国218名癫痫专科医生
2014-06-19 14:56 来源:丁香园字体大小:
(2014年6月13日,北京)近日, 为期三个多月的“蒲公英项目”癫痫学培训宣告顺利完成。此项目旨在帮助提高全国范围内近200家基层医院的神经科医生的癫痫诊治水平,以更好地服务于当地病人。 自去年底启动以来,“蒲公英项目”共邀请了51名癫痫领域的高级专家,分赴北京、广州、成都、武汉、西安等地,为学员做高质量的癫痫专业知识培训。
培训针对癫痫诊疗领域的实际情况,结合真实病例分享,探讨如何最好地服务于病人在门诊环境和社会家庭中的正常生活。来自全国各地的218名基层神经科医生参与了此项目,直言受益匪浅,对癫痫的临床诊断治疗更有信心。
坚持专业治疗 癫痫可控可治
癫痫是最常见的严重神经病症,全世界大约有5000万人遭受着癫痫的折磨。数据显示,目前中国共有900万活跃癫痫病人,其中仅有约30%的患者接受了治疗,也就是说有大约630万患者没有受到合适的诊断和治疗。
由于社会偏见,癫痫患者不仅要忍受疾病所带来的痛苦,而且还要承受巨大的心理压力,尤其在欠发达地区,癫痫病人很难交朋友,找工作,从而导致很多病人隐瞒病情或不愿意接受治疗。然而,作为一种严重的神经病症,癫痫可导致脑损伤,甚至危及生命,因而对癫痫进行有效的治疗非常重要。癫痫治疗的最终目的是避免癫痫的发作。如果采用了正确的抗癫痫治疗,癫痫是可控可治的,70%的患者可以达到无癫痫发作,进而重塑自信、掌握自己的生活。
中国抗癫痫协会(CAAE)会长李世绰先生表示:“此次CAAE与优时比公司(UCB)携手合作的‘蒲公英项目’培训,旨在促进癫痫疾病和诊疗知识在中国的传播,为更多患者提供更专业的帮助、信息和支持。‘蒲公英项目’是一项关心癫痫患者的成长型项目。
经过此次培训,218名受训的专业医生能够为成千上万的患者提供高质量、持续的治疗,而这还只是一个开始。中国需要更多的癫痫专科医生,这个领域需要更多的关注、支持和发展,这对中国的医疗卫生事业发展来说极为重要。我们希望成千上万的癫痫病人能得到蒲公英项目培训带来的更好的医疗服务,给他们带来拥有正常生活的希望。”
培训218名基层医生 专业诊治服务患者
尽管近年来对于癫痫的诊疗在中国的大城市已经有了很大提高,但在很多地区,人们对癫痫疾病和治疗的认识依然存在很多认识误区。因此,“蒲公英项目”应运而生。“蒲公英项目”(Dandelion)是一项由中国抗癫痫协会(CAAE)和优时比公司(UCB)联合推动的癫痫学培训项目,旨在帮助提高全国范围内近200家基层医院的神经科医生的癫痫诊治水平,以更好地服务于当地病人。
此次培训历时3个多月,由51余名癫痫领域的高级专家在北京、成都、上海、广州和西安开展面向218名基层神经科和儿科医生的专业癫痫诊疗培训。除为期3天的培训班外,还有1天的随访以提高知识的应用能力。培训设计主要针对癫痫诊疗领域的实际情况,结合真实病例分享,探讨如何最好的服务于病人在门诊环境和社会家庭中的正常生活。
“蒲公英项目”的参与医生除了3天的专家培训外,还将得到持续的支持。该项目还将建立远程的电话支持中心,实时提供医学技术支持,并在社交平台微信上提供医学教育信息推送。借力于这些途径和平台,可以更准确地定位和提供信息需求,这种创新的模式改变了以前由于地理距离和资源匮乏导致的对医生支持缺位的情况 。
来自山东省菏泽市第三人民医生的刘医生表示:“这次专业的培训让我收获很多,对临床工作有很大帮助,特别是专家会诊的病例讨论,让我们在面对病人诊治时更有信心,希望在以后的临床工作中,能用更专业的知识帮助更多的癫痫病人过上正常生活。”
※ 据悉,“蒲公英项目”还将在专业的健康类网站丁香园(dxy.com)和好大夫(haodf.com)开设专家疾病访谈专区,患者亦可搜索查询自己所在城市接受过癫痫专业培训的医生,获得更为专业的治疗。
※ 蒲公英项目专业微信交流平台现已开通,微信搜索公众号“CAAE-UCB”,即可获取更多癫痫诊治信息。
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